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Kansas CIty, MO

I need to create, I need to keep doing, my world and my options are slowly being taken away by my genetic disorder. Ehlers-Danlos Syndrome means I have to physically hold myself together as all of my bones can slide out of place. Life takes a lot more thought when your body can’t hold together. I am in pain but my pain Will Not Stop Me! Basically I’m what happens when a type A personality ends up with an incurable illness. Hyper driven with the energy of a tortoise! I do a lot of things just slowly: photography, hold two US Patents, making a webtoon and much more!

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